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Topic
Rare Disease Day Special Session | Reimagining Rare: Reconciling Opportunities of the “Most” Advanced Technologies and the Challenges of the “Most” Underserved and Undiagnosed Persons
Date & Time

Selected Sessions:

Feb 27, 2025 12:00 PM

Description
Speaker: Durhane Wong-Rieger, PhD President & CEO Canadian Organization for Rare Disorders (CORD) Toronto, Ontario, Canada CIM celebrates Rare Disease Day with an exclusive presentation by Dr. Durhane Wong-Rieger, a renowned leader in rare disease advocacy and policy. DURHANE WONG-RIEGER, PHD is President & CEO of the Canadian Organization for Rare Disorders, Immediate Past Chair of Rare Disease International, President of Asia Pacific Alliance of Rare Disease Organizations, Treasurer of UN NGO for Rare Diseases, Chair of Patient Advocates Constituency Committee of the International Rare Disease Research Consortium, member of Lancet Commission on Rare Disease, and member of the Editorial Boards of 'The Patient- Patient Centred Outcomes Research and Rare Diseases' and 'Orphan Drugs Journal', and 'Global Commission to End the Diagnostic Odyssey for Rare Diseases.' In Canada, she is also President & CEO of the Institute for Optimizing Health Outcomes and Chair of the Consumer Advocare Network and Canadian Heart Patient Alliance. She is co-chair of Canada’s Rare Disease Drug Strategy Implementation Advisory Group, member of Canada’s Rare Disease Network Steering Committee and Canada’s Newborn Screening Advisory Group. Dr. Wong-Rieger has a PhD in psychology from McGill University and was professor at the University of Windsor, Canada. She is a certified Health Coach, lecturer, and author of three books and many articles.